What's New

Now Available:

Building Resilience in Families Where a Family Member has PWS: Service Providers play a significant role in promoting resilience in families where there is a need to manage PWS....... for article and detailed poster.

On-Line Learning Resource: Successfully Supporting People with Prader-Willi Syndrome.
This on-line course adds new content to the PWS Handbook and covers best practices in working with children, youth and adults with PWS.

The PWS Handbook for Professionals is an easy-to read Handbook which is an effective training resource for anyone needing to orient a new staff person or service provider.
Order Form

Welcome to the Prader-Willi Syndrome Network

The Prader-Willi Syndrome Network provides information and resources for service providers who work with individuals with Prader-Willi Syndrome (PWS) and their families.

Our goal is to support excellent services by sharing information about best practices, educational resources, service systems and even research opportunities.

Our philosophy: People with Prader-Willi Syndrome have the right to live as fully participating members of our community. They also have the right to experience the best possible physical and mental health. Given their unique genetic condition, the concepts of client rights and least restrictive environments must be re-interpreted to control and restrict access to food for people with PWS. This promotes a good quality of life for these individuals.

The PWS Network website will help you become aware of:

Definition of Prader Willi Syndrome (PWS)
Characteristics of PWS
Services which assist individuals with PWS
Resources, best practices for service providers
Training, professional development
Agencies which provide supports and services to individuals with PWS in Central West Region of Ontario

This is a site where service providers can share their stories and successes.

What has worked for you and the people with PWS with whom you work?
Where did you find new ideas and strategies?
What answers are you seeking for challenges related to PWS?

Contact us with your ideas and stories.

Please note: The PWS Network focuses on social service issues, rather than medical research or treatment. These topics are addressed on other, specialized PWS websites, listed on the Resource page.